Patient Advocacy Groups

 

The National Alliance for Thrombosis and Thrombophilia (NATT) is a nationwide, community-based, volunteer health organization formed in August 2003. Committed to preventing and treating the array of major health problems caused by blood clots, NATT’s charter members were visionary patients attending a thrombosis and thrombophilia awareness meeting at the Centers for Disease Control and Prevention.

 

For more information about NATT: http://www.nattinfo.org/

 

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The Platelet Disorder Support Association (PDSA) is a non-profit corporation founded in August, 1998 to provide information, support, and encourage research about immune thrombocytopenic purpura (ITP) and other platelet disorders.

 

For more information about PDSA: http://www.pdsa.org/

 

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The APS Foundation of America, Inc. is a nonprofit health agency dedicated to bringing national awareness to Antiphospholipid Antibody Syndrome (APS), a major cause of recurrent miscarriages, thrombosis, and strokes and heart attacks. The APS Foundation of America, Inc., is a volunteer run, community based non-profit public charity organization and is dedicated to fostering and facilitating joint efforts in the areas of education, support, public awareness, research and patient services.

 

For more information about APS Foundation of America: http://www.apsfa.org

 

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The Thrombophilia Support Page focuses on inherited causes of thrombosis and the diagnosis and management of thrombotic disorders.

 

For more information about the FVL Thrombophilia Support Page: http://www.fvleiden.org/